I am terrible about updating this blog. I am still slightly confused on Katie's health. She had another CF sweat test. Her results were 56/58. 60 and higher is diagnosed as CF. But, she had a DNA test done and it indicates that she does not have CF. This is fantastic news! She is officially diagnosed with CRMS or Cystic Fibrosis related metabolic syndrome. The doctor says it is comparative to mild mild mild mild mild mild CF. She had another ear infection in July, it seems to be a monthly occurrence for her :( Just last week she had viral pneumonia. The doctor explained that with CF, children start out with GI issues, next comes the mucus (sinus issues), then the lung issues. Hopefully, the pneumonia was not the beginning of lung issues for Katie. She is feeling much better. Last Friday, the doctor released her to go back to daycare after a week at home. We did switch her from Albuterol to Xopenex. Wow! What a difference! On the Albuterol Katie was super hyped up and couldn't sit still at all (worse than normal!). The Xopenex is so much better. Her next scheduled doctor's appointment is with the ENT in September for a hearing test. Then in October at the CF clinic. She is still going strong in Karate. She really seems to love it :) She is on her second belt (white belt/yellow stripe).
On Sunday, Andy woke up feeling miserable. Took him to the doctor and he has strep throat. He had to miss the first day of 6th grade! He was able to go back on Tuesday. So far he loves all of his teachers :) Hopefully, he will have a great year. Football practice started a couple of weeks ago. Games start on Sept. 11th. I am excited about this football season :) And I know Katie is ready to cheer for her brother. Jay says Andy is doing really really well at practice. He is growing up so fast! He is a blue belt in karate now, and super excited about it. It won't be too much longer until he is a junior black belt.
I am still doing karate. I got my invite to belt test this weekend, my first belt test. I am absolutely terrified. I have heard that they really push you on endurance. My lungs can't handle too much. Hopefully, it won't be as bad as I fear it will be.
A Slow Cooker Thanksgiving
4 months ago
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